Meeting a Dragon

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-Written by MightyKuen        -Edited by Sandra M

For 16 years now, I have embraced life as a quadriplegic. I often felt like I needed to be an armored knight, and my courage and determination is my armor to protect me from possible prejudice, inaccessibility, and frustrations.  These are the little “demons” I fight in life.

So where did I get the idea of wanting to face a dragon? It all started long long time ago in a land far far away… actually, it was about 6 years ago and in China… my mom told me of a heart-wrenching tale. While my parents were visiting China they encountered a person, much like myself, but no wheelchair, no support and sat on a board with tiny little wheels.  It brought tears to their eyes.  This made me feel sad, and at the same time how lucky to be living in a supportive community and surrounded by open minded and giving people.  After doing some research, I found that the Chinese government has already started making changes, and these changes were accelerated after the Beijing Paralympics.  However, due to the sheer number of registered people with disability (90 million and counting), people are not able to enjoy much of these changes due to a few key factors. Rural communities face the greatest challenges, sometimes they lack the infrastructures necessary to relay information, plus the lack of education affects the government’s effort to convey information, that they are making changes in the community. The second reason is the mindset of people, low self-esteem, and lack of positive outlook. From that point on, I felt a strong urge to help my fellow kinsmen, by using my experiences in Canada, to empower them. Show people there is hope and possibility for their own future.  And in order to do this, I must face a Chinese dragon.

I worked hard to prepare myself.  I started with attending The Steadward Center for Personal Achievement at the University of Alberta to help with strengthening my muscles.  I visited a sports injury doctor named Dr. Gregg to deal with injuries from a fall that I had the previous year.  Next, I looked for training grounds.  I trained on a daily basis on different hills in Edmonton, ramps in builds, in a studio and home for cardio to compliment my strength training.  And finally, to relax and get the knots out of my muscle at the Bethune Medical Center for acupuncture, massage, and cupping.  I did all these preparations between surgeries, doctor visits and frequent autonomic dysreflexia attacks.  People kept asking me “Aren’t you afraid?” “You are sick, why don’t you rest?” “You are injured, why don’t you cancel the event?” and my response is simple: “I only give myself reasons to move forward and never excuses to stop.” After many blisters, modified techniques, positive self-talk and planning out my travel path… at last, I was ready to meet my “dragon” in real life and I headed to China.

 

September 26th started with a loud crash, lighting and rain storm in the early morning, and I didn’t sleep well the night before due to health issues. My friends were worried and asked me if I wanted to cancel the event, but I held out hope that the weather would clear up, and I would feel better soon. Around 6 am, suddenly the rain went from pouring to just a sprinkle, but still, I held out hope to complete the journey, within hours, I was on my way with family and friends heading towards my dragon.  As the bus slowly moved us through the busy morning traffic towards my sleeping dragon in the mountains, I was sharpening my swords and putting on my armor in my mind to mentally prepared for the ultimate battle.

The rain had stopped as the bus pulled into the parking area, I could see the shadow of the “dragon” wrapping around the mountaintop.  In order to ensure the success of my journey, my boyfriend and cousins became my knight and shiny armors took on the responsibility of pushing me about 2 KM on a nicely paved road all the way up to the entrance to the “dragon’s” cave.   With my family and friends supporting me, I felt an overwhelming amount of strength surging through my body. Then I saw the stone plaque which sparked my adrenaline, on it carved 八达岭长城 (Ba Da Ling Great Wall).   Yes, you might have guessed it by now, my dragon is the Great Wall of China, and I will be the first quadriplegic in the world to wheel up it.  The idea was inspired by my hero Rick Hasen, a Paralympian who was also a fellow Canadian that wheeled on the Great Wall of China exactly 30 years ago.  He wheeled around the world in 2 years, 2 months and 2 days, his effort forever changed the lives of people with disabilities, in treatment, care, rehabilitation and outlook on life.  His journey of wheeling on the Great Wall shocked all of China, the world and empowered millions of persons. It is his effort 30 years later that gave me the idea face the dragon.

I was ushered up the newly built wheelchair accessible ramp towards the wall which was built during the 2008 Beijing Olympics.  My friends whispered words of encouragements as we moved closer to my wheelchair entrance.  Before I knew it, we were only 50 meters to my starting point, and 5 min to my battlefield. Millions of butterflies started to fly around in my stomach, thousands of bees start to buzz in my mind… I am getting excited to meet my “dragon”.

I entered the gate with my friends, helped up a 30 degree, unevenly placed stones with big gaps, narrow ramp to the gun tower; popped wheely up one big step to go inside a very narrow arched doorway then backed down one small step to exit the gun tower (these stone doorways width is only about 30 inches); now we had to ask a few strong bystanders to lift me up about 8 stone steps before I am officially on the wall. At last, I am staring into the eyes of the “dragon” and have reached my battlefield.

      

Now I start the preparations to ride the “Dragon”. I had twisted my back due to a fall in 2015, so each uphill push feels like a sharp knife stabbed deep inside my spine.  The same fall had also sprained my wrist.  These injuries had hindered my ability to fully face my dragon but I was stubborn and I took about 30 min to actually strap on real life armors to ensure my victory. A few arm stretches and warm-ups, with butterflies in my stomach ready to explode, I was ready to ride.

 

The Great Wall of China is nothing like how I pictured. It is composed of mostly stairs which is definitely not wheelchair accessible, the short pathway that had no stairs are very difficult to navigate in a wheelchair because it’s much like the scales on a dragon.  The stones on the wall are very worn from millions of visitors every year but the cement holding them together were not, therefore I must pop-a-wheelie with every push.  Good thing I was prepared for such case and brought with me a Freewheel that my friend Dan lend me.  Because the wall was constructed by human power so the path is not evenly built, which I had to compensate by constantly pushing harder on one side just to keep myself balanced and avoid hitting the side of the wall.  Every 100 meters or so, a 1-2 inch “speed bump” was built on the path, which made it very difficult for me to get over, I had to get family and friends to assist me.  And finally, aside from the high altitude, smog and thousands of people simply walk in front of your path, the most difficult challenge I was faced is the incline in the path.  The path I had chosen had an incline ranged from 10 to 20 degrees.  Normally this incline would not be too much of a problem, however, when all of the elements above are combined, this path becomes almost impossible.  Well, there was no time to waste, my adrenaline is pumping and I was ready to ride this “dragon”.

To say the climb was very difficult is an understatement.  I had a very rough start. Due to all the elements mentioned above: I kept pushing myself into the wall due to the uneven surface; I was over spending my energy pushing because of the bumpy cement every few inches in front of me; The rain the night before had made the pathway very slippery.   The only thing that was on my side that day was the temperature, the rain had lowered the temperature to a tolerable degree.  Since I do not sweat from heat as a quadriplegic, it was a blessing to be wheeling the wall in 15 degrees’ weather.    After about 5 mins I realized that I needed to change the strategy because I could not keep this pace much longer.  I reassessed the situation, took a short break to stretch, and started my climb again with renewed energy.  Each push forward used to feel like lifting a 100 pound of weight on an empty stomach, now I push by shifting my weight backward, pop my casters and the freewheel upward to have the wheels over the cement, I use my whole body weight to assist my arms and shoulder to push forward.  This appeared to be working, after shouting encouragement to myself with every push, I found my rhythm, I was once again on my way up the “dragon scales” toward my final destination.

The climb was surprisingly quiet; I guess the bystanders weren’t so sure what I was doing as they have not seen anyone with a disability ever dared to climb a “dragon” before.   “Ah!!! push!!!” I heard myself screaming. Gradually, as people got used to the idea, I heard more cheering’s and positive encouragements uttered.  My boyfriend rushed to my side often to check up on me; enquired if I needed water, to take a break, to remind me to rest. But I was so caught up in the excitement and adrenaline, I pushed on.  I did stop 2 times to pour water on my head because I was overheated as well as one time to stretch my arms.  The goal was within my reach, and I did not want to waste any time to get there.  However, fatigue hit me hard with still 100 more meters to go, but I did not let anyone know. Instead, I started counting each of my pushes out loud.  “1! 2! 3! 3! 4! ….” until I hit 25, I would pause, drinking a sip of water, poured water on my head to cool off and counted my next 25 pushes.  This is much like the techniques I learned from a personal empowerment training that I took at the Pacific Institute.  Achieving success is about making 2 types of goals: long term goals like wheeling on the great wall of China and short term goals like pushing 25 pushes to move ahead.  Counting loudly of my pushes to encourage myself, soon the bystanders had also caught on.  During my last 25 pushes towards my goal, with my father standing and waiting for me at the finish line, everyone was counting with me loudly and clapping to cheer me on.  I suddenly got a surge of energy going through my body and moved me forward with amazing speed.  At the end, I completed my goal, achieved the hardest thing that I’ve ever done in life, faced my “dragon” in 27 minutes, 20 minutes shorter than all of my previous times during training.  I can summarize my experience use one single word— awesome.

Rick Hansen’s wheel around the world in an effort to bring about disability awareness 30 years ago which enabled me to completed my quest to face my “Dragon” today.  I hope my effort will help bring changes in the lives of the current generations of persons with disabilities.  You’ve journeyed with me on my quest to meet my “dragon” and the Great Wall of China, you have experienced with me the triumph, tribulations, heartaches, pain and how to overcome them.  Life is full of little “demons” … in order to succeed, do not give yourself excuses to give up, only give yourself reasons to move forward.  Good luck on achieving your dreams and see you on your next adventure.

Wheel’n Asia (part 1)

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Having been suffering from severe depression and ongoing health issues from my surgeries, I felt like my world has turned upside down and mixed in a blender… rather than take pills and numb my mind, instead, I chose a different path… I chose the road.

 

What is it like to travel in a wheelchair around China? Some people may fear the answer but the truth is it is quite interesting. China is a fascinating country and a country that is advancing when it comes to accessibility. I want you to test this theory, I want you to wheel in China I find out what interesting adventure I may find myself in.

 

I landed in Shanghai after a 14-hour plane ride. My body may be exhausted from the trip, my health may have failed me but my mind is racing with excitement as my adventure is about to begin. Every adventure is not without his hick ups, such as how my adventure started. After getting out of the airport it took some time to find a hotel that would accept me, my wheelchair as well as my passport. Next comes to getting a ride to the Hotel, which we quickly found out that taxi drivers are not very disability friendly as they drove us in circles to get our hotel. After that incident, we exclusively call DiDi car service (滴滴出行) using a phone app. Most people may not know this, but this car company holds his driver to a higher standard and they do not often discriminate against people with disabilities getting rides from them. Now everything is settled, my adventures can officially begin.
 
Shanghai is my first stop. We headed out the very next day to visit the famous landmark call the Oriental Pearl TV Tower. We visited the riverside, only needed to wheel about 1 km or so to find a perfectly built wheelchair accessible ramp which would allow me to get to the pier. The site is breathtaking. The river effectively separates the two thriving worlds in Shanghai.  We have one side, the building took after the traditional design of Chinese style buildings like the King’s palace which housed over 30 banks from China and around the world.  Across the river where the famous landmark is located, are filled with the grandest modern designed mega structures of various trillion dollar companies.  One can really feel the “war” between the tradition of the Chinese culture and the thirst for modern advancement.
 
Accessibility around the river is very well designed.  Every 1-2 kilometers of so there will be a ramp, and the ramp is built to the disability code of Canadian standard.  The platform is very smooth for a wheelchair as well as for people with visual impairment.  The streets surrounding the river is also fairly accessible, except for about 90% of the shops, they all have at least one step.  Some of the bigger stores or banks do have portable ramps hidden, you just have to find a way to ask.  Or have the alternative solution, get a few helpful people to lift you in.
 
I also visited the Madame Tussauds wax museum in Shanghai, we have to travel about an extra kilometer or two to find the entrance and it was a very interesting experience to be surrounded by famous stars from the Asia and Hollywood. I definitely took way too many selfies.
Oh, everywhere you go or travel to, the most important thing is food… open your mind, open your mouth, don’t think… just bite.  Yummy!
Shanghai is so much fun for a wheeler!

 

Choo choo, I’m off on the super train to the next city, it’s fast, cheap, reliable… and best of all,  accessible (with a little help).

What happens when your heart gets broken

So, this is the question…. What happens to you if your heart shatters? And gets broken by the people you love the most? You live, you live with all your strength and courage, and smile in the future that belongs to you.  People who are meant to be with you will be with you; people who loves you will love you still. You, can only do what’s good for you. You, can only try your best to live for your future. 

I went, saw and readied myself!

Edited by Sandra M

I arrived in China on Sept 19th and couldn’t wait to visited the beautiful monstrous world wonder of my dreams, I went there the next day.  As this beautiful sleeping dragon called The Great Wall lay before me, it beauty and architecture literally took my breathe away. The part of the Great Wall that I planned to wheel on lies on top of a mountain range about 1-2 hours drive outside of central Beijing.

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After parking the vehicle, we had to walk/wheel uphill for about 2 km to get to the base of the BaDaLing Great Wall, this itself was a workout and half.  Next is going through one specially made wheelchair ramp built during the 2008 Paralympics (to my surprise, they follow the North American slop height standard), 1 slightly higher slop, then one last wheelchair ramp like the previous before getting to the wheelchair entrance.

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After entering, one must go up a 15-20-degree stone made (looks like original wall structure) pathway to go up to the watch tower, after getting bumped over 2 steps within the watch tower, I must get bumped up another 8 steps before I am actually on the wall and ready for my challenge.

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Now that I was on the wall, I’m faced with the new challenge.  I had prepared myself for the high attitude, warm temperature as well as the degree of incline of the wall, but what I was not prepared for was the slanted slopped walkway, the very warn down rocks and especially the cement holding the rocks together were still remaining therefore the terrain was like mini stairs or boxes and very difficult to push up.  I tried a few pushes to get a feel of the wall… for a quadriplegic, to use the word difficult to describe the experience is an understatement.

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My boyfriend was very concerned after seeing me struggle and urged me to reconsider, I smiled and said “I’ll let you know.” but deep down I already have the answer.  Now that I have come 8000 km, I saw my finish line and knew what I am facing… I just need to ready myself.  After seeing the determination in my eyes, my boyfriend shook his head and knew my answer too.

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