Meeting a Dragon

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-Written by MightyKuen        -Edited by Sandra M

For 16 years now, I have embraced life as a quadriplegic. I often felt like I needed to be an armored knight, and my courage and determination is my armor to protect me from possible prejudice, inaccessibility, and frustrations.  These are the little “demons” I fight in life.

So where did I get the idea of wanting to face a dragon? It all started long long time ago in a land far far away… actually, it was about 6 years ago and in China… my mom told me of a heart-wrenching tale. While my parents were visiting China they encountered a person, much like myself, but no wheelchair, no support and sat on a board with tiny little wheels.  It brought tears to their eyes.  This made me feel sad, and at the same time how lucky to be living in a supportive community and surrounded by open minded and giving people.  After doing some research, I found that the Chinese government has already started making changes, and these changes were accelerated after the Beijing Paralympics.  However, due to the sheer number of registered people with disability (90 million and counting), people are not able to enjoy much of these changes due to a few key factors. Rural communities face the greatest challenges, sometimes they lack the infrastructures necessary to relay information, plus the lack of education affects the government’s effort to convey information, that they are making changes in the community. The second reason is the mindset of people, low self-esteem, and lack of positive outlook. From that point on, I felt a strong urge to help my fellow kinsmen, by using my experiences in Canada, to empower them. Show people there is hope and possibility for their own future.  And in order to do this, I must face a Chinese dragon.

I worked hard to prepare myself.  I started with attending The Steadward Center for Personal Achievement at the University of Alberta to help with strengthening my muscles.  I visited a sports injury doctor named Dr. Gregg to deal with injuries from a fall that I had the previous year.  Next, I looked for training grounds.  I trained on a daily basis on different hills in Edmonton, ramps in builds, in a studio and home for cardio to compliment my strength training.  And finally, to relax and get the knots out of my muscle at the Bethune Medical Center for acupuncture, massage, and cupping.  I did all these preparations between surgeries, doctor visits and frequent autonomic dysreflexia attacks.  People kept asking me “Aren’t you afraid?” “You are sick, why don’t you rest?” “You are injured, why don’t you cancel the event?” and my response is simple: “I only give myself reasons to move forward and never excuses to stop.” After many blisters, modified techniques, positive self-talk and planning out my travel path… at last, I was ready to meet my “dragon” in real life and I headed to China.

 

September 26th started with a loud crash, lighting and rain storm in the early morning, and I didn’t sleep well the night before due to health issues. My friends were worried and asked me if I wanted to cancel the event, but I held out hope that the weather would clear up, and I would feel better soon. Around 6 am, suddenly the rain went from pouring to just a sprinkle, but still, I held out hope to complete the journey, within hours, I was on my way with family and friends heading towards my dragon.  As the bus slowly moved us through the busy morning traffic towards my sleeping dragon in the mountains, I was sharpening my swords and putting on my armor in my mind to mentally prepared for the ultimate battle.

The rain had stopped as the bus pulled into the parking area, I could see the shadow of the “dragon” wrapping around the mountaintop.  In order to ensure the success of my journey, my boyfriend and cousins became my knight and shiny armors took on the responsibility of pushing me about 2 KM on a nicely paved road all the way up to the entrance to the “dragon’s” cave.   With my family and friends supporting me, I felt an overwhelming amount of strength surging through my body. Then I saw the stone plaque which sparked my adrenaline, on it carved 八达岭长城 (Ba Da Ling Great Wall).   Yes, you might have guessed it by now, my dragon is the Great Wall of China, and I will be the first quadriplegic in the world to wheel up it.  The idea was inspired by my hero Rick Hasen, a Paralympian who was also a fellow Canadian that wheeled on the Great Wall of China exactly 30 years ago.  He wheeled around the world in 2 years, 2 months and 2 days, his effort forever changed the lives of people with disabilities, in treatment, care, rehabilitation and outlook on life.  His journey of wheeling on the Great Wall shocked all of China, the world and empowered millions of persons. It is his effort 30 years later that gave me the idea face the dragon.

I was ushered up the newly built wheelchair accessible ramp towards the wall which was built during the 2008 Beijing Olympics.  My friends whispered words of encouragements as we moved closer to my wheelchair entrance.  Before I knew it, we were only 50 meters to my starting point, and 5 min to my battlefield. Millions of butterflies started to fly around in my stomach, thousands of bees start to buzz in my mind… I am getting excited to meet my “dragon”.

I entered the gate with my friends, helped up a 30 degree, unevenly placed stones with big gaps, narrow ramp to the gun tower; popped wheely up one big step to go inside a very narrow arched doorway then backed down one small step to exit the gun tower (these stone doorways width is only about 30 inches); now we had to ask a few strong bystanders to lift me up about 8 stone steps before I am officially on the wall. At last, I am staring into the eyes of the “dragon” and have reached my battlefield.

      

Now I start the preparations to ride the “Dragon”. I had twisted my back due to a fall in 2015, so each uphill push feels like a sharp knife stabbed deep inside my spine.  The same fall had also sprained my wrist.  These injuries had hindered my ability to fully face my dragon but I was stubborn and I took about 30 min to actually strap on real life armors to ensure my victory. A few arm stretches and warm-ups, with butterflies in my stomach ready to explode, I was ready to ride.

 

The Great Wall of China is nothing like how I pictured. It is composed of mostly stairs which is definitely not wheelchair accessible, the short pathway that had no stairs are very difficult to navigate in a wheelchair because it’s much like the scales on a dragon.  The stones on the wall are very worn from millions of visitors every year but the cement holding them together were not, therefore I must pop-a-wheelie with every push.  Good thing I was prepared for such case and brought with me a Freewheel that my friend Dan lend me.  Because the wall was constructed by human power so the path is not evenly built, which I had to compensate by constantly pushing harder on one side just to keep myself balanced and avoid hitting the side of the wall.  Every 100 meters or so, a 1-2 inch “speed bump” was built on the path, which made it very difficult for me to get over, I had to get family and friends to assist me.  And finally, aside from the high altitude, smog and thousands of people simply walk in front of your path, the most difficult challenge I was faced is the incline in the path.  The path I had chosen had an incline ranged from 10 to 20 degrees.  Normally this incline would not be too much of a problem, however, when all of the elements above are combined, this path becomes almost impossible.  Well, there was no time to waste, my adrenaline is pumping and I was ready to ride this “dragon”.

To say the climb was very difficult is an understatement.  I had a very rough start. Due to all the elements mentioned above: I kept pushing myself into the wall due to the uneven surface; I was over spending my energy pushing because of the bumpy cement every few inches in front of me; The rain the night before had made the pathway very slippery.   The only thing that was on my side that day was the temperature, the rain had lowered the temperature to a tolerable degree.  Since I do not sweat from heat as a quadriplegic, it was a blessing to be wheeling the wall in 15 degrees’ weather.    After about 5 mins I realized that I needed to change the strategy because I could not keep this pace much longer.  I reassessed the situation, took a short break to stretch, and started my climb again with renewed energy.  Each push forward used to feel like lifting a 100 pound of weight on an empty stomach, now I push by shifting my weight backward, pop my casters and the freewheel upward to have the wheels over the cement, I use my whole body weight to assist my arms and shoulder to push forward.  This appeared to be working, after shouting encouragement to myself with every push, I found my rhythm, I was once again on my way up the “dragon scales” toward my final destination.

The climb was surprisingly quiet; I guess the bystanders weren’t so sure what I was doing as they have not seen anyone with a disability ever dared to climb a “dragon” before.   “Ah!!! push!!!” I heard myself screaming. Gradually, as people got used to the idea, I heard more cheering’s and positive encouragements uttered.  My boyfriend rushed to my side often to check up on me; enquired if I needed water, to take a break, to remind me to rest. But I was so caught up in the excitement and adrenaline, I pushed on.  I did stop 2 times to pour water on my head because I was overheated as well as one time to stretch my arms.  The goal was within my reach, and I did not want to waste any time to get there.  However, fatigue hit me hard with still 100 more meters to go, but I did not let anyone know. Instead, I started counting each of my pushes out loud.  “1! 2! 3! 3! 4! ….” until I hit 25, I would pause, drinking a sip of water, poured water on my head to cool off and counted my next 25 pushes.  This is much like the techniques I learned from a personal empowerment training that I took at the Pacific Institute.  Achieving success is about making 2 types of goals: long term goals like wheeling on the great wall of China and short term goals like pushing 25 pushes to move ahead.  Counting loudly of my pushes to encourage myself, soon the bystanders had also caught on.  During my last 25 pushes towards my goal, with my father standing and waiting for me at the finish line, everyone was counting with me loudly and clapping to cheer me on.  I suddenly got a surge of energy going through my body and moved me forward with amazing speed.  At the end, I completed my goal, achieved the hardest thing that I’ve ever done in life, faced my “dragon” in 27 minutes, 20 minutes shorter than all of my previous times during training.  I can summarize my experience use one single word— awesome.

Rick Hansen’s wheel around the world in an effort to bring about disability awareness 30 years ago which enabled me to completed my quest to face my “Dragon” today.  I hope my effort will help bring changes in the lives of the current generations of persons with disabilities.  You’ve journeyed with me on my quest to meet my “dragon” and the Great Wall of China, you have experienced with me the triumph, tribulations, heartaches, pain and how to overcome them.  Life is full of little “demons” … in order to succeed, do not give yourself excuses to give up, only give yourself reasons to move forward.  Good luck on achieving your dreams and see you on your next adventure.

I went, saw and readied myself!

Edited by Sandra M

I arrived in China on Sept 19th and couldn’t wait to visited the beautiful monstrous world wonder of my dreams, I went there the next day.  As this beautiful sleeping dragon called The Great Wall lay before me, it beauty and architecture literally took my breathe away. The part of the Great Wall that I planned to wheel on lies on top of a mountain range about 1-2 hours drive outside of central Beijing.

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After parking the vehicle, we had to walk/wheel uphill for about 2 km to get to the base of the BaDaLing Great Wall, this itself was a workout and half.  Next is going through one specially made wheelchair ramp built during the 2008 Paralympics (to my surprise, they follow the North American slop height standard), 1 slightly higher slop, then one last wheelchair ramp like the previous before getting to the wheelchair entrance.

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After entering, one must go up a 15-20-degree stone made (looks like original wall structure) pathway to go up to the watch tower, after getting bumped over 2 steps within the watch tower, I must get bumped up another 8 steps before I am actually on the wall and ready for my challenge.

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Now that I was on the wall, I’m faced with the new challenge.  I had prepared myself for the high attitude, warm temperature as well as the degree of incline of the wall, but what I was not prepared for was the slanted slopped walkway, the very warn down rocks and especially the cement holding the rocks together were still remaining therefore the terrain was like mini stairs or boxes and very difficult to push up.  I tried a few pushes to get a feel of the wall… for a quadriplegic, to use the word difficult to describe the experience is an understatement.

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My boyfriend was very concerned after seeing me struggle and urged me to reconsider, I smiled and said “I’ll let you know.” but deep down I already have the answer.  Now that I have come 8000 km, I saw my finish line and knew what I am facing… I just need to ready myself.  After seeing the determination in my eyes, my boyfriend shook his head and knew my answer too.

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Training mentally, and the body will follow

-edited by Sandra M

 

Life for a person with a disability is not easy. We constantly have to deal with health issues.  We are also dealing with emotional demons. For those of you that know me or have been following my journey you know the struggles that I have been enduring.  In the past 2 years I have had 7 surgeries and have had many complications.  What most people don’t know is that behind the smiles, for the past year I have been also been battling severe depression.   Through this experience, I found a way to survive and overcome hardship.

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So, how did I manage to keep smiling and continue training?  The answer is simple.  I had a goal to reach, I have the Great Wall of China to wheel.  Knowing I had a goal with a specific date already set, I had to overcome.   During the toughest times of my life, I have forced myself to wake up and get up! I have forced myself to leave the house.  Forced myself to hit the gym and the hills to train. Slowly, these actions became routines, these routines became a life style.  All my energy, passionate determination is focused on achieving my goal of wheeling up the Great Wall of China.

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wheel up Emily Murphy Hill

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Every day I’m driven by my dream, I can see the finish line, and my health issues just faded away into the background. I planned each step to ensure the success of my goal.  I signed up with P.A.L.S training at the Steadward Center from the University of Alberta, they provide a student trainer who helps me to train specific muscle groups.  I have a set routine of workout between training at the gym, wheeling up hills, dancing Zumba, wheelchair rugby practices with Edmonton Steel Wheels Club and doctor’s offices 7 days a week.  My friends giving me suggestions. My teammate Dan Piller lent me his rollers (an exercise machine for wheelchair users) and a Freewheel (a single wheel attachment for the wheelchair to make smooth wheeling).   Friends from far and wide are giving me encouraging words and well wishes.  All of these factors have helped me both mentally and physically during these difficult times. I am so grateful to have great friends and I live in a wonderful community.

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I just had my 15th new “birth” birthday party.  If you wonder what it is?  I have been celebrating the day of my car accident as a rebirth into my new life.  At my celebration, my friends and family donated money towards my next mini project, buying pressure sore relief mattresses for people with disabilities in China.  We managed to raise enough money for 10 mattresses as well as soaker pads to go with them.  I am so grateful to have such supportive friends in my life.

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The date to become the first quadriplegic to wheel on the Great Wall of China is set, September 26th is the day. I hope my achievement and hard work will encourage people in my community and worldwide to think outside the box.  To not let difficulties in life prevent them from living a full life, and to be empowered, to not only dream big, but put their dreams into action.

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With 8 days to go, my mind is already at the Great Wall, soon my body will follow